Great images hardtack. Good luck mate.

Many here will be silently watching and hoping for your health to get on the up and up. 

On 25/03/2025 at 08:50, Damo said:

Great images hardtack. Good luck mate.

Many here will be silently watching and hoping for your health to get on the up and up. 

Thanks Damo! I’ll just keep posting my experiences both good and bad. It’s not a sympathy seeking exercise, but more designed to show some positivity in the face of what could otherwise be an extremely devastating time. I’m fortunate in that I’m a fairly pragmatic person, and as such this is having very little affect on my state of mind.  I just hope that if there are others on here, and the odds are that there are, who if they are going through a similar close encounter, that this might at least let them know they’re not alone and that it is possible to clear one’s mind every now and then.

 

Edited March 26Mar 26 by hardtack

My band played our last gig for an indefinite period of time on Saturday 12th April. As the chemo has had a direct affect on my voice, making it quite fragile, I brought in some friends from local bands to help out. They included Paul Field (The Cockroaches and Sacred Hearts), Brendan Smith (The Stray Dogs), Marcus Phelan (Brave New Works and The Beatels), and Mickey Mahoney (The Treble Clefs and The Allniters). It was just as well that I did invite this crew as during the first set, I gave myself three songs to perform and by the second I was starting to sound like the love child of Tom Waits and Donald Duck! Fortunately, by the time the second set came around it had warmed up and worked well for the rest of that and the third set. Other invitees included Richard Burgman (The Saints and The Sunny Boys), Richard Rhule (early Dynamic Hepnotics drummer), plus a couple of unplanned fill ins.

It was a real spirit lifting afternoon despite it happening at the end of the first week of my fortnightly chemo cycle which is when I’m at my lowest ebb.

Later during the week (last Wednesday) I again met up with Seiko, Mitsuteru and Takami from the Japanese band Buddhadatta, for coffee and general chatting. A nicer bunch you couldn’t hope to meet and another real spirit lifter!

The Irinotecan and Fluorouracil that they have me on for my chemo, is having a cumulative affect on my body, and while not being too vicious on my appetite and my general energy levels (I can still walk to the shops just making maybe three stops on the way to regain my breath), but it has now completely [censored] up my taste buds… everything, but…EVERYTHING tastes absolutely foul!

Edited April 20Apr 20 by hardtack

Well, here I am back in for cycle #7 and feeling pretty positive. A quick consult with my oncologist revealed that my CT scan (taken last week) shows that the spots on my lungs and liver are shrinking… the largest spots in my lungs have reduced by about 33% since my last scan (whenever that was). My CEA marker that gives an indication as to how active the rectal tumour is, is now down from 26 when I started to 14. All good news so far, although I did lose 4.2kg over the past two weeks… something I’m kind of liking.

Great pics @hardtack, especially the ones of the Buddhadatta crew !

Hope the good news keeps coming.

5 hours ago, Grapeviney said:

Great pics @hardtack, especially the ones of the Buddhadatta crew !

Hope the good news keeps coming.

So do I. Did you happen to get along to one of their gigs at all?

Hi Tim! I only just came across this thread. Your attitude and resilience is amazing and also inspiring. Wishing you all the best in your continued fight.

21 hours ago, hardtack said:

So do I. Did you happen to get along to one of their gigs at all?

I’m all gigged out, I’m afraid, although music is still very central to my life. But it’s at home these days.

2 hours ago, Ethan Tremblay said:

Hi Tim! I only just came across this thread. Your attitude and resilience is amazing and also inspiring. Wishing you all the best in your continued fight.

Thanks so much matey! I’m posting for a couple of reasons… as a cautionary tale in the hope that others don’t make the same mistakes that I did, to show that there’s a positive way to address a very negative experience (of course it helps if you’re a pragmatist), and just to share the changed approach to my lifestyle that I’ve taken (albeit not by choice, but rather change being the mother of invention).

I really do appreciate your appreciation 😁

Edited yesterday at 07:321 day by hardtack