I hope you don’t object to me essentially documenting the process that I’m going through, the effects of that process, and their impact on me (it may be of interest to some, but if not, please just ignore).
For me, expressing what I’m experiencing is kind of helpful, and I hope that an understanding of what I am going through, might in some way help anyone reading this, to understand, via my experience, what others they might know, are going through (not everyone, for whatever reason, likes to share or discuss such experiences).
After a five week course of radiotherapy in 2023, in which I went through 25 sessions of radiation as well as oral chemotherapy, my first encounter with full on chemotherapy was a five and a half month stint of fortnightly cycles beginning in September 2023 and ending in February 2024. The following is also applicable to my current treatment regime, with only the toxic waste they pump into me being different (bottle is still the Irinotecan
The cycle begins on a Monday and involves a 3 hour infusion of the chemo drug (Oxaliplatin in 23/24 now replaced with Irinotecan) at the hospital, after which I have an infusion pump bottle attached to me for the next two days (I have a permanent port in my chest through which they feed their toxic waste), which is full of a chemo ‘drug’ called Fluorouracil. Oxaliplatin is the devil’s own brew… it is nasty! Irinotecan is far more gentle, but still hard going with some different side effects (described below).
On the third day (Wednesday) I return to the hospital, where they detach said bottle; a quick and painless procedure.
On the Friday of the following week I attend the hospital for a blood test so they can keep track of the cancer’s veracity via what they call the CEA marker.
On the following Monday I meet with my oncologist after which the whole cycle begins again later that morning.
I am now in the middle of my second fortnightly cycle (I restarted chemotherapy in the last week of January) and have just started to get hit with the side effects… gastric issues which are controllable with medications, and, as of today, major hair loss. In my 2023/24 chemo, I managed to keep my hair, but it’s looking pretty certain that this time around, I’m going to be as bald as the proverbial badger; at least I’ll be able to finally put those MND beanies to good use!
Anyway, that’s pretty much all I have to say today… if you’ve read this far, thank you! I hope you might have gained some insight into what is involved and what literally thousands of people are going through every day… as I mentioned in the original post, this is NOT about me seeking attention, or worse, sympathy, it is about building awareness and hopefully encouraging others to occasionally get check ups (colonoscopy, bowel cancer screening test you get in the post, chest x-ray, mammogram etc etc). I’m paying the price for my ambivalence… don’t you be like Tim (me 🤣).
I might as well plug my band t-shirts again, as this is a way you can add to your wardrobe while donating to Cancer or MND research. Just follow, this link:
https://www.facebook.com/share/p/1A17nCiLTy/?mibextid=wwXIfr
And just for [censored] and giggles, here’s a clip of my UK based friend’s son’s composition in which he is sporting one of my shirts: